Steven had his pcr drawn about two weeks ago now... and his results are about a week away. And I am about as "un-frilly" as I have ever been about it. He looks good, sounds good and is getting on with his life in a very normal way.
It's quite amazing how 5 years, well, five and a half, can feel both long and short at the same time. I see advertisements with Christmas trees in them already and it makes me aware of just how fast the years are screaming by. This year my Christmas tree will again be filled with little gifts depicting all the treasures and gifts I have received through Steven's cml. All the friendships, the experiences, the learning and the love I have been shown, I love having them decorating the tree.
Life sure takes some twists and turns and Steven having cml is the biggest to me. It has made the greatest impact on my life, my growth, learning and understanding. Its affected my life in ways that I never imagined and hopefully soon I will be able to really start giving back somehow, to help others the way they helped me through this dealing with cancer in my child. I know that I am incredibly fortunate that Steven is responding so well, and every day I am extremely grateful for this. At the same time it has been a heck of a ride - even with everything going relatively smoothly. There were many times that I just did not know how to go on, how to 'just be'..... but there was always someone there to walk with me through those tough times. So many of those times it was someone that I had not even met, someone walking a similar road that just 'got it', understood and was there for me. It actually brings tears to my eyes just thinking how that worked, again and again over all these years. What wonderous, amazing years these have been!
My Christmas tree is not going to be big enough to carry all those little gift decorations! What a thought.
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I'm a 24 year ols CMLer and a mom of a 2 year old and 6 month old. I know that it is a million times harder to see your child going through something. my prayers are with your family.
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